Decreasing levels of fail

Inspiration porn shames people with disabilities. It says that if we fail to be happy, to smile and to live lives that make those around us feel good, it’s because we’re not trying hard enough. Our attitude is just not positive enough. It’s our fault. Not to mention what it means for people whose disabilities are not visible, like people with chronic or mental illness, who often battle the assumption that it’s all about attitude. And we’re not allowed to be angry and upset, because then we’d be “bad” disabled people. We wouldn’t be doing our very best to “overcome” our disabilities.

I suppose it doesn’t matter what inspiration porn says to us as people with disabilities. It’s not actually about us. Disability is complex. You can’t sum it up in a cute picture with a heart-warming quote.

Disability is not a bad word

photo of adult runner with leg prosthetics running next to a small girl with leg prosthetics, with the caption 'the only disability in life is a bad attitude - scott hamilton'
Being disabled doesn’t mean being completely unable to do anything.  It means having an impairment, something that affects your ability to function in day to day life the way someone without that impairment can.  Disability is not a bad word, identifying as disabled doesn’t mean you’ve given up.  There is nothing inherently *wrong* with being disabled.  And a positive attitude does not make that impairment go away.  

I’m disabled, and I hate neat little quotes like this.  They reinforce the idea that identifying as disabled means you’ve given up or think you’re less than, which is absolute bollocks.  And they put the blame for being unable to do things on the disabled person, when it is more often either society or the impairment itself which is the obstacle.  

A good attitude will not suddenly mean that all the shops in town become accessible to people in wheelchairs, or that people will stop parking over dropped kerbs, or that employers will start hiring people with mental illnesses, or that someone’s pain that prevents them from getting out of bed will disappear and let them pop to the shops or someone’s lack of manual coordination will suddenly vanish and allow them to cook for themselves. And so on and so forth.

Some things you can find ways around, some things you can’t - either way you are still disabled.  If you have to plan your route around town in detail because the council doesn’t bother putting dropped kerbs in enough places, or the camber is too steep for you get along it on your own in places, if you have to always have a backup plan for getting home at short notice without needing to walk far in case your pain or fatigue flares, if you have to arrange for someone to come around and do your cooking or washing for you or help you to shower… these are all ways you negotiate your disability, but they are all still ways in which you are disabled, because you can’t just live the way people without that impairment do. You can’t be spontaneous, or it takes longer to do things, or it’s more expensive so you can’t do other things, and some things will just always be unavailable to you.  

This is what being disabled is.  

And with regard to having a ‘bad attitude’ - think about how you feel when you’re ill or you have severe toothache or if you were in an accident and broke something.  Now think about having to endure that pain or nausea or exhaustion every fucking day, and having to function through it. Think about living with stigma and judgement from other people every day because of it.  Think about losing parts of your life that you loved and no matter how positive you are they aren’t ever coming back.  Think about maybe living with the knowledge your condition will get worse.  

People with disabilities have a right to have whatever the fuck attitude gets them through, and no one has a right to judge and say ‘pff well if you were just cheerier and tried harder you could totally live a normal life’. Not even other people with disabilities.  Every disability is different, and just because you can stay cheery or maintain a high level of function through yours does not mean someone else can through theirs - even if it appears to be similar on the outside, you can never know what it’s actually like to experience for them.  (And this is without even discussing depression, which is often mistaken for a ‘bad attitude’ rather than an illness.)

This goes both ways, by the way.  Don’t assume someone’s life is terrible just because they’re disabled. A lot of disabled people are not suffering, their impairment is just part of their life and they’re perfectly happy with it, it’s perfectly normal to them.  You don’t go around feeling terrible because you don’t have a third arm - some people feel that way about other people having two when they only have one. A lot of people don’t feel their condition is problematic at all, or only to a very limited amount, they are only disabled by the way society treats them.   Some people do experience a lot of pain and suffering in some form or other due to their disability, but it doesn’t ruin their life, it’s just one of the many bad things that people have to endure in life. People are more than just their disabilities, and even if that disability has a pretty huge impact on them the rest of their life doesn’t just disappear.  When you look at a disabled person and feel nothing but pity you’re erasing every part of their life that isn’t their impairment.  

There’s also the question of reducing disabled people to inspiration for able-bodied people - this happens an awful awful lot, and that’s problematic in itself, but I think that’s probably a discussion for another day.  

Sorry this is so long, but this bugs me, and I thought it would be better to try to explain why than just sit here fuming impotently.  I know people mean well when they create and/or share these images, but I think it’s important people understand a lot of people with disabilities find them the opposite of helpful.

Fucktards On Facebook

So, sometimes I attempt to call people out/engage in discussions about social justice type issues on Facebook.  Yes, I know, I’m clearly a masochist.  Sometimes these things go well, and an interesting discussion can be had.  More often than not I realize I’ve just spent a while doing the typing equivalent of banging my head against a brick wall.

I am trying to get better at walking away when people are clearly so stupid that engaging with them is completely pointless and bad for my blood pressure.  It is frustrating to do so, as you know that not bothering to reply will leave them with an unjustified feeling of success, that they will think they have outsmarted you (rather than, in fact, so outstandingly outdumbing you that you don’t even know where to begin).  At this juncture I remind myself that their opinion really doesn’t matter, so they can feel as pleased as punch and it is of no concern to me - why should I value the opinion of someone like that?

Sometimes, the shit they say is also really beautifully unintentionally hilarious as well.

So, I have decided that from now on, when I reach the point of sitting on my hands to stop myself replying, I shall instead post the Fail on here for all you lovely fuckers to read! 

So, today’s fail was on Body-Shaming! (Man, this comes up a LOT on facebook.)

Wheeeee!

Eejit #1: If a bar can refuse to serve drunken people, then why can’t McDonalds refuse to serve fat bastards?

… [some comments] …

Me: Y’know, someone’s weight doesn’t actually impact inherently on what kind of person they are, so it’s really kind of unpleasant to refer to overweight people as ‘fat bastards’. And a lot of people are overweight because of health problems that are out of their control, so blaming it on their greed is an assumption that really isn’t fair to make, and one overweight people have to deal with all the goddamn time. And when people are overweight because of their diet there can also be a lot of other factors at work - economic, cultural, mental health issues. Some people are overweight because of poor self control, and judging and shaming these people usually just leads to further depression which tends to lead to further over-eating. Some people are overweight and still healthy and are happy to be this way, and this is a choice that is their’s and none of your business. Some people are overweight and not healthy and that’s still none of your business because it’s their body. And no, I don’t think paying taxes that go into the NHS gives you any right to judge them for their choices about their health any more than it gives you a right to blame anyone else for their choices about their health, and people make unhealthy decisions for all sorts of reasons every day - you just can’t see most of them. 

Should you decide to try to refute this in order to continue being abusive about overweight people then kindly address all my points rather than ignoring most of them and just arguing one or two, because even if all bar one of them were faulty (which I really don’t think they are) any one of these is sufficient reason to stop abusing them.

Eejit #1: [image of trollface]

Eejit #2: Dear Kiki, as I assume u don’t live in indonesia u cnt really go on some preaching bend about what’s morally right and morally wrong! The fat bastards that Eejit #1 will be mentioning does not refer to obesity or shape whatsoever and does infact refer to the ‘fat bastards’ in this country who will order everything on the menus just so that people around them see them spending a shit load of money. More often than not the greed associated with these ‘fat bastards’ is one for status, wealth and power and can often be found using a corrupt government to aid their lust! I implore you to come over here and see for yóurself the kind of ‘fat bastards’ Mr Eejit #1 is harking on about before you kindly drop a morality lecture on all who happen to read Eejit #1’s posts! Obesity isn’t a mental illness or even a physical disability, it is a lifestyle choice and a wonderdul one at that! Show me a funny thin person!!!!!

—-

OMG EVERYONE I NEED TO MOVE TO INDONESIA I WANNA GO ON A PREACHING BEND PLZ KTHXBAI

Also, CONGRATS OVERWEIGHT PEOPLE! The word fat no longer refers to obesity or shape in any way! Eejit #2 has declared it and thus it shall be so!

Oh, and don’t forget how HI-LARIOUS those fat people are! You can’t be prejudiced if you can name an overweight comedian whose jokes you enjoy…!

“When they approached the gynaecologist for a hysterectomy, Erica’s parents asked if they had to apply for a court order, but were told they didn’t need one.
“Nobody questioned it,” said EM. “The gynaecologist said: ‘I’ll do it. When do you want to do it?’ We were surprised it went as smoothly as it did. We thought the insurance company would call but they didn’t. My son asked whether we needed a court order. She said ‘Oh, of course not, you want what’s best for your daughter’.”

Nobody questioned a child having a hysterectomy. The parental request went smoothly. Insurance covered it without balking. This reinforces what I have been hearing for the last few years from physicians, ethicists, lawyers and disability rights activists: the so called Ashley Treatment is quietly being done. No ethics review. No legal review. No follow up research. No long range studies. Nothing. This scares me to death. How can this happen? To me the answer is simple as it is dangerous. Children with profound cognitive and physical disabilities are not fully human. They do not share same rights as children that can think and move within a broad spectrum we deem normal. These children have no bodily integrity—their bodies can be changed at the whim of parents and physicians. These children do not warrant legal protection.

Five years ago a controversial procedure was carried out on a 9 year old American girl with severe cerebral palsy known as Ashley X. Her growth was permanently retarded, surgery performed to remove her breast buds and give her a hyserectomy keeping her in a lifelong ‘Peter Pan’ situation.

The Guardian has discovered that at least 12 other families are now undergoing such treatment to permanently infantalise their children. These are families who are undoubtedly doing what they perceive as being in the best interests of their children, but is that really the case? And more importantly the question we should all be asking is why families are pushed into the position that they even need to consider such radical options to prepare for the continuing care of their adult children?

I’ve also noticed that many of the men in successful poly situations tend to be, in the words of the article, “Burning Man hippie types.” Though I’ve never been to Burning Man (I don’t do hot, dry, or dirty), I move through a lot of those kinds of crowds and I’ve noticed that there’s a higher percentage of men who can identify and talk about how they feel than in the general population. There are more men who can hold space for other people’s emotions. And there are more men who understand how to work with feelings instead of hiding from them. Personally, I’d love to see those skills spread to other communities. I think it’ll make the world a happier place.

sleeptightgrimrite:

State Representative Alan Dick believes it should be necessary to get permission from their husbands or boyfriends in order for a woman to procure an abortion.


”if a woman gets pregnant and decides to have the baby, he said, then the guy is on the hook for paying for it for 18 years. Yet if…

vile-goblin-daughter:

culture matters

Sometimes I hear people say that racism/sexism/etc in culture isn’t important or worth criticizing. ”Oh it’s just a book,” they say. ”It’s just a crappy TV show.” ”It’s just a commercial.”

This argument always baffles me. It’s like if you put…